by Sydney Johnston | Oct 11, 2022 | Uncategorized
Published October 11, 2022 | Every year, PKD Awareness Day is celebrated through special ceremonies and activities to educate others about PKD and advocate for the PKD Community. With a recent resolution passing in the Senate, this day is now officially designated as...
by Sydney Johnston | Sep 27, 2022 | Uncategorized
Published on September 27, 2022 | The heat is fading and fall activities are popping up. Whether it’s for a football game, movie night, or fall potluck, we can all use another PKD-friendly snack option. This recipe for a seven-layer dip from our cookbook,...
by Sydney Johnston | Sep 22, 2022 | Uncategorized
Published on September 20, 2022 | Last year, the Critical Path Institute’s Polycystic Kidney Disease Outcomes Consortium (PKDOC), the PKD Foundation, and Otsuka hosted the 2021 PKD Regulatory Summit. In addition, key stakeholders from the pharmaceutical industry and...
by Sydney Johnston | Feb 16, 2021 | Uncategorized
Published on February 16, 2021 | Just last month, a new U.S. Congress was seated with more than 60 first-term members and a renewed sense of duty and optimism for crafting legislation for the next two years. This term—the 117th session of Congress—is a great...
by Sydney Johnston | Oct 6, 2020 | Uncategorized
Published October 6, 2020 Karel Liem Jr., M.D., Ph.D., Yale University How did you first get involved in PKD research? Karel: My interest in PKD research developed from my genetic studies on the role of the primary cilium in developmental signaling. The cilium...
by admin | Mar 17, 2020 | Awareness, Q and A, Uncategorized
Published March 17, 2020. In 2019, Stevie Danihel joined PKD Foundation as its new Director of Strategic Partnerships. As she settles into her new role, we had the chance to sit down and learn more about her vision for the future. PKD Foundation (PKDF): Can you tell...