University of Wisconsin-Madison

The UW PKD Clinic was established in 2016 to help provide state-of-the-art patient care to individuals with PKD in Wisconsin and neighboring areas. The clinic also aimed to form the backbone of UW PKD research program and learner education in PKD. The current PKD-focused providers at our clinic include Dr. Gauri Bhutani, Dr. Micah Chan, Courtney Boyer NP and Tyler Gorman PA. All of the providers have several years of experience in care of PKD patients. Our offerings encompass all different aspects of care of PKD patients. (1) We offer evidence based diagnosis of PKD and PKD sub-type including dedicated renal imaging and genetic testing. (2) Management of hypertension, diet and cardiovascular risk for all our PKD patients is based on PKD-focused scientific evidence. (3) We also offer semi-automated kidney volume measurements to allow best prognostication of ADPKD and Tolvaptan treatment is available for patients who are at high risk of progression or already progressing fast. We have protocols in place for various aspects of tolvaptan treatment to help make this process smooth for our patients. (4) Multi-disciplinary providers focused on care of extrarenal manifestations of PKD are readily available within our UW system. (5) Our dedicated nurses and medical assistants are closely involved in care of our PKD patients and have gotten to know them very well over the years. We also have a nurse coordinator available to help patients with the difficult transition to dialysis and transplantation. (6) For patients interested in or eligible for research, we guide to on-site or off-site research as appropriate. We have been a site for PKD clinical trials over last several years. (7) Finally, we have also generated learner interest in PKD. Dr. Bhutani has mentored 4 medical students and 1 resident over last 5 years in PKD-related projects which have been presented at Americal Society of Nephrology and Association of University Radiologists national meetings.