Shining Star
You never know what the new day will bring. We can plan ahead our intentions for the next day, but unexpected or unwanted obstacles may present themselves. This happened to...
A caregiver’s perspective
Valen’s husband, Noah, offers insight into what it’s like to be a caregiver to a PKD patient. I sat with my face in my hands as the fifth person tried...
Communicating With Your Doctor
I’ve been seeing nephrologists for 23 years since my diagnosis of PKD when I was 10 years old. The first time I met my pediatric nephrologist, I was told: PKD...
Toast to a Cure
It’s healing and inspiring when we take something that tried to knock us down and use what we’ve learned to lift others up. This was illustrated last Saturday at the...
Love Your Body
Loving ourselves is all encompassing, both internally and externally. If 20 women were to stand side by side, each would have a different physique and characteristics, making them unique. Yet,...