As Rob Herman likes to say, “It’s like being naked in the middle of a tornado, with all this stuff flying at you, with nothing to hold onto but each...
Director of Community Engagement, Nicole Harr Have you ever used an app to help manage living with PKD? There’s an app for everything these days! Why not use an app...
Valen and her dad, Bill, on Father’s Day 2018 My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us...
Rob Herman as a child after his mothers diagnosis. Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no...
A henna tattoo, reading “breathe,” that Valen got before her liver procedure. I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself...
