by Sydney Johnston | Oct 15, 2022 | ARPKD, Caregivers, Family Life
Published on October 15, 2022 | Today is Pregnancy and Infant Loss Remembrance Day. Every October 15, we honor we honor lost pregnancies and infant deaths which includes miscarriages, still births, and of course, ARPKD. A rare genetic disorder, autosomal recessive...
by PKD Foundation Staff | May 29, 2019 | ADPKD, ARPKD, Education
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with PKD. What did attendees...
by PKD Foundation Staff | May 2, 2019 | Awareness, Education
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our exciting new partnership with Discovery Communications / Discovery en Español. Knowing how important it is to share information about polycystic kidney...
by admin | Apr 9, 2019 | Awareness, Walk for PKD
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were going to college in Utah. We married and moved to Orem, UT, where we live with our daughters Sadie (2 ½ years) and Lacey (3 months). As a mother of a child with a rare...
by PKD Foundation Staff | Mar 22, 2019 | Awareness, Education
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To show this, we asked our Marketing Specialist, Tierra Hogan, a non-patient,...
