by PKD Foundation Staff | Mar 4, 2019 | Advocacy, Awareness, Education
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d like to share the highlights:...
by PKD Foundation Staff | Jan 4, 2019 | DIY for PKD, Run for PKD
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies and passions into creative fundraisers, 100% of the money you raise goes directly to fund PKD research. You can help give hope, like our friend...
by PKD Foundation Staff | Aug 21, 2018 | ARPKD, Walk for PKD
Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With the event just a few weeks away, we reached out to Kevin to learn more about his family’s experience with PKD once his daughter Lucy was diagnosed with ARPKD, how their...
by PKD Foundation Staff | Aug 17, 2018 | ARPKD, Education
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, ARPKD parent and...
