The will to survive, part 1

I flew to my birthplace of York, Pa. at the beginning of May to say my goodbyes to my paternal grandmother, who passed on April 11, 2017, and to support my family. I stood in the mausoleum where my grandmother was laid to rest and read her name plate in disbelief –...

A letter from a PKD patient to her mom

Dear Mom, Happy Birthday! You are 61! Wow! The first word that comes to mind is ‘hallelujah!’ With living cross-country from each other—from California to Pennsylvania—for seven years now, I am so grateful to be in Pennsylvania with you today to celebrate this...

Determination

Determination, the “D” in my PKD! Because so many members of my family grapple with PKD, or have died from it, I have developed a strong connection with those who endure the pain and suffering caused by every form of kidney ailment. Sharing my story at a press event...