by PKD Foundation Staff | Mar 19, 2019 | Research
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the development of kidney organoids may help us get closer to new treatments:...
by PKD Foundation Staff | Mar 14, 2019 | Transplantation, Voices of PKD
To know me is to know my family and PKD: how PKD defines my family, but does not hold us back. How PKD is in our daily thoughts, but does not hold us back. How PKD challenges us, but does not hold us back. How PKD tests our strengths, but does not hold us back. I am a...
by PKD Foundation Staff | Mar 4, 2019 | Advocacy, Awareness, Education
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d like to share the highlights:...
by PKD Foundation Staff | Feb 14, 2019 | Awareness, Transplantation
We’re spreading double the love today for National Donor Day! In the US alone, more than 120,000 people are waiting for a life-saving organ donation. We recently reached out to New England Chapter Co-Coordinator Judy Ehrlich to share how her donor has impacted...
by PKD Foundation Staff | Feb 6, 2019 | Staying Healthy
Here at the PKD Foundation, we love seeing how engaged the greater community is when we reach out for your stories. In the past couple of weeks, we’ve been asking on social media for your best lifestyle tips and wanted to share a few of your best suggestions:...
