by PKD Foundation Staff | Jul 16, 2019 | Advocacy, Awareness
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one of few times a sitting president has brought chronic kidney disease — and...
by PKD Foundation Staff | Jul 9, 2019 | Awareness, Walk for PKD
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 Walk for PKD events will take place across the country with a goal of raising $2,000,000 for PKD research. The family-friendly events are the largest gathering of PKD...
by PKD Foundation Staff | Jun 25, 2019 | Advocacy, Q and A
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn more about the approval of HR 2740 and what the bill means for PKD patients and their families. Q: What is HR 2740? Alexis: HR 2740 is a bill approved by...
by PKD Foundation Staff | Jun 18, 2019 | ADPKD Registry, ARPKD, Awareness, Research
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who will...
by PKD Foundation Staff | Jun 11, 2019 | ADPKD, Chapters, Q and A, Transplantation
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinator for the past 19 years. Her passion lies in heightening PKD awareness through fundraising events, talking to anyone and everyone about PKD, and...
