Should You Enroll Your Child in a Clinical Study?

Should You Enroll Your Child in a Clinical Study?

  Published on September 13, 2022 | At the age of 5, Ian Jones (name changed for privacy) was diagnosed with ARPKD. During a routine trip to his pediatrician, his mother mentioned that Ian was having a lot of trouble staying dry at night. Tests revealed that he...
Raising Awareness on PKD Awareness Day

Raising Awareness on PKD Awareness Day

Published on August 30, 2022 | Next weekend, we celebrate a very important day to the PKD community—PKD Awareness Day. Every year, September 4 is dedicated to educating friends, families, and communities about PKD. Awareness can look like a lot of things. Sharing your...
PKD Represented at Transplant Games of America

PKD Represented at Transplant Games of America

Published on August 19, 2022 | Every two years, thousands of transplant recipients, living donors, donor families, individuals on waiting lists, caregivers, transplant professionals, and supporters gather for the world’s largest celebration of life— the Transplant...