Advocacy
Awareness
Education
Research
My PKD Journey: Receiving a Kidney Transplant
Published September 15, 2020 | With an ADPKD diagnosis, there's more than a 50% chance a patient will develop kidney failure by age 50. Dialysis or a kidney transplant is the only treatment option once a person has kidney failure. Choosing to pursue a kidney...
ADPKD Patient Registry Celebrates Anniversary
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
What to Know About PKD Awareness Day
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more people learn about PKD, more people get involved. And that means more...
Why We Walk for PKD
Published August 11, 2020 | For 20 years, the Walk for PKD has been the nation’s largest gathering of the PKD community. Families, friends, and PKD supporters gather every year raising vital dollars for PKD research. But that’s not the only reason they walk. Last...
Walk for PKD: Announcing 10-Day Virtual Event
Published July 7, 2020 | Now in its 20th year, the Walk for PKD remains the nation’s largest gathering of the PKD community. As the PKDF's signature fundraising and public awareness event, the Walk has raised an inspiring $33 million over two decades. But things...
Raising Awareness of PKD, One Mask at a Time
Published June 16, 2020 | Even the simplest act can have a huge impact. While the ongoing pandemic has kept many indoors, Toni Stuart used this time at home to raise awareness of PKD. With the help of her family and her own two hands, she sewed cloth masks to...
-
Published September 15, 2020 | With an ADPKD diagnosis, there’s more than a 50% chance a patient will developRead More -
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was toRead More -
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiringRead More -
Published August 11, 2020 | For 20 years, the Walk for PKD has been the nation’s largest gathering of theRead More -
Published July 7, 2020 | Now in its 20th year, the Walk for PKD remains the nation’s largest gathering ofRead More -
Published June 16, 2020 | Even the simplest act can have a huge impact. While the ongoing pandemic has keptRead More
