PKD Connection Blog

On January 22, 2017, our esteemed Co-Founder, Jared J. Grantham, M.D., passed away. In the year since his passing, we have done our best to honor his legacy of dedication to advancing PKD research and supporting patients. As tribute to […]

One of the best ways to raise awareness for PKD is to get creative! The more unique you can make your methods of educating others, the more it will stick with them. We recently reached out to Bill Brazell, a […]

“The past speaks to us in a thousand voices, warning and comforting, animating and stirring to action.” – Felix Adler For over a decade now, our community has gathered together in early September and focused intently on raising awareness for […]

To those in the PKD community, we’re aware of how the disease affects our friends and families. For this PKD Awareness Day, it’s important for those unaffected by the disease to understand that PKD is closer than you think. To […]

Meet Gene Okun! Gene has PKD, and so did his father. Since his diagnosis, Gene’s kidneys have grown big (doctors say they may be the world’s largest) and dumb (functioning at only 18 percent). Currently in search of a living […]

This National Kidney Month, follow the inspiring PKD journey of the Phelps family and how they’re finding hope for a better, healthier future. In part three of our blog series, Ashley writes a letter to her sons about how PKD […]

This year for National Kidney Month, we’re asking you to help raise awareness for PKD and give hope to future generations. All month long, we have followed the inspiring PKD stories of the Phelps and the Wiesman families – but […]

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