Since the Foundation’s establishment in 1982, it has invested nearly $60 million in dedicated PKD research, clinical and scientific grant awards, fellowships, and scientific meetings. The Foundation’s financial commitment over the years has seen results on a local, national, and even global level, including initiating funding for young investigators from around the world, supporting innovative research ideas, and providing seed funding to allow researchers worldwide to apply for larger National Institutes of Health and Department of Defense grants.
Our research team has also led the launch of the nation’s largest patient-powered ADPKD Registry and brings together multiple research stakeholders in the PKD Outcomes Consortium. In 2022, the Foundation launched the PKD Centers of Excellence program, to ensure access to PKD-specialized care and accelerate the translation of research studies to the clinic.
Together, these programs form a research continuum that spans from pre-clinical basic science to clinical trials to translational efforts to maximize efforts toward our goal to end PKD.