Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Dr. Checklist
It is nice to have wish lists in life, but when it comes to our doctors it is important to get not only what we wish for, but also what we need. Therefore, I think it is important for us to have...
Listen to your body
In life, we are often encouraged to follow our heart and listen to our gut. It simply means to trust our intuition. I believe this is a big component of caring for ourselves and making wise...
Balancing stress
My neurologist recently informed me that the common triggers for seizures are low magnesium, lack of sleep and stress. At my last appointment, my doctor asked if I felt stressed. I chuckled...
Endless Love
Before Noah and I moved from Pennsylvania to California in May of 2010, he asked my dad for my hand in marriage. My father said yes, but was honest with him and cautioned him that our future...
Third graders’ perspective on PKD
We all have different perspectives on life and living with PKD. Our uniqueness makes the world a beautiful place, and we can all learn and grow from each other. After speaking to more than 85...
Life Beyond PKD
As children, we are encouraged to get involved in pastimes such as sports, clubs and hanging out with friends. I recall doing ballet, gymnastics, singing lessons, piano and sleepovers with...
-
“When one door closes, another opens.” This saying has felt very fitting for Noah and me recently. The door thatRead More
-
Noah and I went back to the very spot we got married in Yosemite National Park to mark our 5-yearRead More
-
This is part of a special series for the month of November, where we share with you what some ofRead More
-
It is nice to have wish lists in life, but when it comes to our doctors it is important toRead More
-
In life, we are often encouraged to follow our heart and listen to our gut. It simply means to trustRead More
-
My neurologist recently informed me that the common triggers for seizures are low magnesium, lack of sleep and stress. AtRead More