Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients as Partners 2019 in Philadelphia, PA. It was great to hear about...
My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. I was diagnosed with PKD in October 2015 and got in involved with the PKD Foundation through going...
We're only a couple months out from the 2019 PKD in Children Conference, and if you're a PKD parent, this is a can't-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to...
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of...
Fundraise Your Way: Connecticut father turns homebrew passion into thousands in honor of infant son’s memory
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies or passions into creative fundraisers, 100% of the money you raise goes...
As Kidney Month starts winding down, keep up the momentum by raising your voice for PKD! Both the House andRead More
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. ThisRead More
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients asRead More
My name is Paige Trischler, but I also go by Elisabeth Rae. I am 16 and from Pittsburgh, Penn. IRead More