Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Aneurysms: The silent destroyers, part 2
Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no longer kids. I was 13 and wanting my own life, like any...
Father Daughter Q&A
My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helping us out for a week. He took me to San Francisco for a liver procedure that I needed as...
Apps to help PKD patients manage daily diet and health
Have you ever used an app to help manage living with PKD? There’s an app for everything these days! Why not use an app to help make the best nutrition choices while shopping at the grocery store...
Father of a PKD patient celebrates Father’s Day by sharing his family’s story
Hello, and Happy Father’s Day to all the dads! My name is Ed McVey and my daughter Meredith has PKD. When I was asked to tell our story for this blog post, I realized how important it is to talk...
The doctor/patient team
I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their...
Kidney donor and transplant recipient celebrate friendship on Best Friends Day
In honor of today being Best Friends Day, we reached out to our friends Liz Casperite and Maria Weaver to learn more about how their transplant journey brought them closer together. Philadelphia...
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Our cookbook, Cooking Well, doesn’t just have delicious, kidney-friendly recipes—it also has best practices from kidney experts! Check out adviceRead More -
I’m a very active participant in my healthcare. I am passionate about being the best advocate for myself and others.Read More -
Please join the PKD Atlanta Chapter as we welcome Dr. Rahbari-Oskoui, MD, MS, FASN to discuss JYNARQUE™ (Tolvaptan), clinical trialsRead More -
Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids wereRead More -
My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helpingRead More -
Have you ever used an app to help manage living with PKD? There’s an app for everything these days! WhyRead More