Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about...
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney...
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD...
Our own Nicole Harr, Director of Community Engagement, has spent the last two years sharing pieces of her journey as she’s prepared to receive a kidney transplant. Now, as the day of her surgery...
Colorful superheroes – honest-to-goodness Heroes for Hope – turned out in force to make this year’s Northeast Ohio Walk forRead More
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD andRead More
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. WeRead More