Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
New handbook provides help and education for ARPKD parents and patients
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about...
Local volunteer leader gives an inside look at PKD Foundation Chapters
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. We first learned of PKD when my oldest daughter’s ultrasound revealed some kidney...
“The Call” and Kaley, Part II
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a...
PKD Connect Resource Center offers peer mentoring services
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD...
Fundraising tips for the fall Walk for PKD season
Our annual Walk for PKD is just around the corner! As our signature fundraising event, 100% of the funds you raise go to PKD research to help find treatments and a cure. Our Community Fundraising...
PKDF staff member Nicole Harr shares her reflection pre-transplant
Our own Nicole Harr, Director of Community Engagement, has spent the last two years sharing pieces of her journey as she’s prepared to receive a kidney transplant. Now, as the day of her surgery...
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Colorful superheroes – honest-to-goodness Heroes for Hope – turned out in force to make this year’s Northeast Ohio Walk forRead More -
On the road again… It’s great to be on the road again! It’s Walk for PKD season! For many ofRead More -
Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With theRead More -
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD andRead More -
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. WeRead More -
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKDRead More