Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
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The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
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In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the...
Local volunteer leader gives an inside look at the St. Louis Chapter
My name is Jean Sommer and I am the St. Louis Chapter and Walk Coordinator. In 2001, I was diagnosed with ADPKD2. My sister and brother have it also. My sister and I have rare massive Polycystic...
Mother who lost two sons to ARPKD takes on mission to help other affected families
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Marquila Turner, a member of the...
Neither rain nor cold could stop the Oklahoma Walk for PKD!
It may have been a cold and rainy Saturday, but not even the weather conditions could deter the passion and commitment of our Oklahoma Walk for PKD participants! The Walk was held at beautiful...
Superheroes Rule the Day at Northeast Ohio Walk for PKD
Colorful superheroes – honest-to-goodness Heroes for Hope – turned out in force to make this year’s Northeast Ohio Walk for PKD a resounding success. The two-mile walk took place at Cleveland’s...
On the Road Again with Walk for PKD
On the road again… It’s great to be on the road again! It’s Walk for PKD season! For many of our staff, that means we are out on the road all over the country, supporting our Walk volunteers. I...
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At the PKD Foundation, we’re proud to offer support through the PKD Connect Peer Mentor Program. This program is designedRead More -
In late September of this year, we welcomed our new Director of Research, Elise Hoover, to the PKD Foundation staff.Read More -
Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! RegistrationRead More -
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost lovedRead More -
My name is Jean Sommer and I am the St. Louis Chapter and Walk Coordinator. In 2001, I was diagnosedRead More -
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost lovedRead More