Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Sneak Peek: The 10-Day Walk for PKD
In two weeks, members of the PKD community will unite for a 10-day virtual Walk for PKD. Months of planning, fundraising, and organizing will culminate in the nation's largest public awareness...
How to be a Long-Distance PKD Caregiver
Published September 22, 2020 | When your loved one has PKD but lives hundreds of miles away or more, staying involved as a PKD caregiver can be trying. Mary Perry, of Antioch, Illinois, learned...
My PKD Journey: Receiving a Kidney Transplant
Published September 15, 2020 | With an ADPKD diagnosis, there's more than a 50% chance a patient will develop kidney failure by age 50. Dialysis or a kidney transplant is the only...
ADPKD Patient Registry Celebrates Anniversary
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with...
What to Know About PKD Awareness Day
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more...
Understanding PKD Pain and Daily Life
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically...
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Dean was a passionate advocate for PKD, a dedicated volunteer & a great friend. His legacy will live on throughRead More -
I never asked; she volunteered. One test; one match. And just like that, May 21, 2019 Sara Kelly selflessly andRead More
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Published October 6, 2020 Karel Liem Jr., M.D., Ph.D., Yale University How did you first get involved in PKDRead More -
In two weeks, members of the PKD community will unite for a 10-day virtual Walk for PKD. Months of planning,Read More -
Published September 22, 2020 | When your loved one has PKD but lives hundreds of miles away or more, stayingRead More -
Published September 15, 2020 | With an ADPKD diagnosis, there’s more than a 50% chance a patient will developRead More