Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
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The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
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Advocate raises her voice on Rare Disease Day
Published on February 28, 2018 | Today, on Rare Disease Day, we give voice to millions of people worldwide living with rare diseases through education and advocacy. Autosomal recessive...
Wife of transplant recipient inspired to raise PKD and living donor awareness
When it comes to finding a living donor, many PKD patients face the same difficult question: how do you ask someone for a kidney? From friends and family to Facebook pages and t-shirts, PKD...
Artichoke dip from Cooking Well
The Super Bowl may have passed but that doesn’t mean we can’t keep enjoying appetizers here and there, especially if the appetizer is healthy! Our Marketing Specialist, Tierra Hogan, spent this...
Raising PKD awareness one good hYOUman tag at a time
Peeking in the window of a clothing store in Sedona, Ariz., the first thing I saw was a shirt with the words, “My life story will be a good one” printed on it. I immediately walked into the...
PKD Foundation establishes PKD in Children Council
PKD parents, patients, researchers and advocates gathered together in Chicago in early February for the first meeting of the newly formed PKD in Children Council. As the PKD Foundation seeks to...
Even the sun needs downtime
“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist....
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At the PKD Foundation, we honor various and unique patient perspectives to show the broad scope of experience that PKDRead More -
March is National Kidney Month! Join us as we raise awareness for PKD. The more who know about PKD,Read More -
Elizabeth Hogan, ARPKD patient, fundraiser, and advocate. Published on February 28, 2018 | Today, on Rare Disease Day, we giveRead More
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When it comes to finding a living donor, many PKD patients face the same difficult question: how do you askRead More -
Start with good ingredients to get great flavor! The Super Bowl may have passed but that doesn’t mean we can’tRead More