Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
It felt like an elephant was sitting on my chest. I was taking shallow breaths as the pain in my upper stomach was unbearable. A light touch of my arm rubbing across my stomach made me want to...
It’s All What You Make of It
When I go into the hospital for a procedure, I compare it to a day when I fly cross-country. I go with the mindset that it will be a long day, where I must be relaxed and know that a lot of it is...
The Chain of Giving
On Tuesday I walked proudly across the street toward the Firefighters’ Memorial in Capitol Park, adjacent to the State Capitol in Sacramento, California. I spotted the festive blue and white...
Horizon of Hope
Three years ago today, Noah and I woke up in Colorado Springs, Colorado. Our Volkswagen station wagon was filled with the supplies we needed for our month-long cross-country journey and move from...
Wonderful To Be Alive
Yesterday I was asked, “How does it feel to be a spokesperson for so many causes where people look at you and the first thing they think of is your kidney issues?” The first thought that popped...
The Colors of Hope
I put the finishing touches on my festive Donate Life outfit as I put on my big blue and green earrings in preparation for an interview with the Auburn Journal. I was wearing a frilly green tank...
“I think it actually takes a lot of guts for us to come to terms with this that we areRead More
During my recent eight-day stay at Sutter Auburn Faith Hospital, I liked to keep the curtain by my hospital roomRead More
“Keeping up with the Joneses.” Whether it is in a positive way or out of envy, I believe as humansRead More
It felt like an elephant was sitting on my chest. I was taking shallow breaths as the pain in myRead More
When I go into the hospital for a procedure, I compare it to a day when I fly cross-country. IRead More
On Tuesday I walked proudly across the street toward the Firefighters’ Memorial in Capitol Park, adjacent to the State CapitolRead More