Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Horizon of Hope
Three years ago today, Noah and I woke up in Colorado Springs, Colorado. Our Volkswagen station wagon was filled with the supplies we needed for our month-long cross-country journey and move from...
Wonderful To Be Alive
Yesterday I was asked, “How does it feel to be a spokesperson for so many causes where people look at you and the first thing they think of is your kidney issues?” The first thought that popped...
The Colors of Hope
I put the finishing touches on my festive Donate Life outfit as I put on my big blue and green earrings in preparation for an interview with the Auburn Journal. I was wearing a frilly green tank...
You Have the Power
My big brown eyes popped wide open and I had never felt more alive in my entire life! I have lost track of the number of surgeries I have had, however I know I have always been quite groggy when...
In Honor of My Other Half
My transplant surgeon, Dr. Robert Montgomery, described me as someone who was depersonalized by my illness. I was fortunate to learn priceless thoughts and information from my transplant surgeon...
The Tightrope of Life
Life is a constant balancing act as we walk on our individual tightropes. Some days are smooth sailing and we glide across with such grace. Other days we find ourselves swaying back and forth as...
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It felt like an elephant was sitting on my chest. I was taking shallow breaths as the pain in myRead More -
When I go into the hospital for a procedure, I compare it to a day when I fly cross-country. IRead More
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On Tuesday I walked proudly across the street toward the Firefighters’ Memorial in Capitol Park, adjacent to the State CapitolRead More
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Three years ago today, Noah and I woke up in Colorado Springs, Colorado. Our Volkswagen station wagon was filled withRead More
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Yesterday I was asked, “How does it feel to be a spokesperson for so many causes where people look atRead More
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I put the finishing touches on my festive Donate Life outfit as I put on my big blue and greenRead More