Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Not A Victim
“I think it actually takes a lot of guts for us to come to terms with this that we are not super heroines and it is not about limitations, but preservation to what we have here and now and going...
The Sound of Healing
During my recent eight-day stay at Sutter Auburn Faith Hospital, I liked to keep the curtain by my hospital room door partially closed. The first thing I would see were the person’s shoes walking...
Rich in Life
“Keeping up with the Joneses.” Whether it is in a positive way or out of envy, I believe as humans it is a natural reaction to compare ourselves to one another. As a young girl I found myself...
Crystal Clear
It felt like an elephant was sitting on my chest. I was taking shallow breaths as the pain in my upper stomach was unbearable. A light touch of my arm rubbing across my stomach made me want to...
It’s All What You Make of It
When I go into the hospital for a procedure, I compare it to a day when I fly cross-country. I go with the mindset that it will be a long day, where I must be relaxed and know that a lot of it is...
The Chain of Giving
On Tuesday I walked proudly across the street toward the Firefighters’ Memorial in Capitol Park, adjacent to the State Capitol in Sacramento, California. I spotted the festive blue and white...
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We naturally possess fear of the unknown. We who have PKD know we have it, but some of us chooseRead More
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“I think it actually takes a lot of guts for us to come to terms with this that we areRead More
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During my recent eight-day stay at Sutter Auburn Faith Hospital, I liked to keep the curtain by my hospital roomRead More
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“Keeping up with the Joneses.” Whether it is in a positive way or out of envy, I believe as humansRead More