Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
You Have the Power
My big brown eyes popped wide open and I had never felt more alive in my entire life! I have lost track of the number of surgeries I have had, however I know I have always been quite groggy when...
In Honor of My Other Half
My transplant surgeon, Dr. Robert Montgomery, described me as someone who was depersonalized by my illness. I was fortunate to learn priceless thoughts and information from my transplant surgeon...
The Tightrope of Life
Life is a constant balancing act as we walk on our individual tightropes. Some days are smooth sailing and we glide across with such grace. Other days we find ourselves swaying back and forth as...
“Wind Beneath My Wings”
“Did you ever know that you're my hero, and everything I would like to be?”… -from song recorded by Bette Midler The first memory I have of my mom is her sitting at the kitchen table. I was five...
A Face to Kidney Disease
When you think of PKD, what do you picture in your mind? Is it the image with a normal-sized kidney in comparison to the football-sized PKD kidney polluted with cysts? Is it the unknown of what...
Up for a PKD Challenge?
“By a show of hands, how many people know what PKD (polycystic kidney disease) is?” This is how I begin most of my speeches. I have asked that question at over 80 events. I continue to be amazed...
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Three years ago today, Noah and I woke up in Colorado Springs, Colorado. Our Volkswagen station wagon was filled withRead More -
Yesterday I was asked, “How does it feel to be a spokesperson for so many causes where people look atRead More
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I put the finishing touches on my festive Donate Life outfit as I put on my big blue and greenRead More
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My big brown eyes popped wide open and I had never felt more alive in my entire life! I haveRead More
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My transplant surgeon, Dr. Robert Montgomery, described me as someone who was depersonalized by my illness. I was fortunate toRead More
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Life is a constant balancing act as we walk on our individual tightropes. Some days are smooth sailing and weRead More