Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Silver lining to my PKD
I love this time of year as we are surrounded with friends, family and fun festivities. Throughout the holidays, there is a special feeling of love and friendship in the air. Decorations,...
What’s in your suitcase?
As a PKD patient and transplant recipient, going on trips takes extra organization. I joke that half my suitcase is filled with medical items such as my blood pressure cuff, thermometer, medical...
A caregiver’s perspective
Valen's husband, Noah, offers insight into what it's like to be a caregiver to a PKD patient. I sat with my face in my hands as the fifth person tried to start an IV in Valen’s delicate veins....
Unsung Heroes
“Mom, my head hurts!” As a 5-year-old, I stood in the kitchen repeating those four words several times, each time louder, until I fell to the floor and had my first grand mal seizure. This is the...
The reSEARCH for a cure
On our PKD journey, patients and researchers search for many answers, all with the common goal of discovering a cure. We patients may search to find out why we have this disease, what we can do...
Halloween candy: everything in moderation
Trick-or-treating is in full effect! Our homes, offices and bellies are likely full of candy, and it is only the beginning. When I worked at an office job, I was in awe of the amount of candy and...
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Individuals who are born with natural talents, like artists and singers, amaze me. I wonder what it would feel likeRead More -
As I forge ahead on my path of discovery, I continue to learn the importance and the art of beingRead More
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The emotions connected with the end of one year and the start of a next are intriguing to me. IRead More
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I love this time of year as we are surrounded with friends, family and fun festivities. Throughout the holidays, thereRead More
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As a PKD patient and transplant recipient, going on trips takes extra organization. I joke that half my suitcase isRead More
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Valen’s husband, Noah, offers insight into what it’s like to be a caregiver to a PKD patient. I sat withRead More