Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Nothing is a Coincidence
Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spread on social media the past couple of weeks. We should be proud of the difference we’ve...
Everyone Has a Story
We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiver to someone who has PKD, you have a story to tell. Some of us are more private than...
Education = Empowerment
I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter...
Communicating With Your Doctor
I’ve been seeing nephrologists for 23 years since my diagnosis of PKD when I was 10 years old. The first time I met my pediatric nephrologist, I was told: PKD was one of the best diseases to have...
Toast to a Cure
It’s healing and inspiring when we take something that tried to knock us down and use what we’ve learned to lift others up. This was illustrated last Saturday at the PKD Foundation Sacramento...
Love Your Body
Loving ourselves is all encompassing, both internally and externally. If 20 women were to stand side by side, each would have a different physique and characteristics, making them unique. Yet, we...
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When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You willRead More -
I love that my living kidney donor, Sally Robertson, has been a part of my life since I was in 8thRead More
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Actions speak louder than words. A mere “thank you” to my living kidney donor, Sally Robertson, seems inadequate as I’veRead More
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Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spreadRead More
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We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiverRead More
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I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years agoRead More