Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
The Art of Being Present
As I forge ahead on my path of discovery, I continue to learn the importance and the art of being present. Being in the moment is mastered on an individual basis and is ever-evolving – it can be...
My path of discovery
The emotions connected with the end of one year and the start of a next are intriguing to me. I can tell I am getting older because the years appear to be passing faster than they did when I was...
Silver lining to my PKD
I love this time of year as we are surrounded with friends, family and fun festivities. Throughout the holidays, there is a special feeling of love and friendship in the air. Decorations,...
What’s in your suitcase?
As a PKD patient and transplant recipient, going on trips takes extra organization. I joke that half my suitcase is filled with medical items such as my blood pressure cuff, thermometer, medical...
A caregiver’s perspective
Valen's husband, Noah, offers insight into what it's like to be a caregiver to a PKD patient. I sat with my face in my hands as the fifth person tried to start an IV in Valen’s delicate veins....
Unsung Heroes
“Mom, my head hurts!” As a 5-year-old, I stood in the kitchen repeating those four words several times, each time louder, until I fell to the floor and had my first grand mal seizure. This is the...
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Growing up, I never imagined what life would be like in my 30s. I never had a grand plan for how myRead More
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Never underestimate the power of your mind. Our days and lives are driven by our thoughts; our emotions can helpRead More
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Individuals who are born with natural talents, like artists and singers, amaze me. I wonder what it would feel likeRead More
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As I forge ahead on my path of discovery, I continue to learn the importance and the art of beingRead More
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The emotions connected with the end of one year and the start of a next are intriguing to me. IRead More
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I love this time of year as we are surrounded with friends, family and fun festivities. Throughout the holidays, thereRead More