Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Fundraise Your Way: California man gathers family and friends to raise funds with beer and bocce ball bash
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When you turn your hobbies or passions into creative fundraisers, 100% of the money you raise goes...
Voices of PKD: Kate Callahan
My name is Kate Callahan and I’m a 21-year-old college student from the San Francisco Bay Area. My journey with PKD begins when I was seven years old. My father became increasingly ill with PKD...
Raise your voice for PKD during Congress’s April recess
As Kidney Month starts winding down, keep up the momentum by raising your voice for PKD! Both the House and Senate will leave Washington, D.C. from April 15-26, 2019, and many will be back in...
Kidney Month Challenge: Tell someone new
For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To...
PKDF Chief Scientific Officer on kidney organoids: what they are and why they’re important
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the...
PKDF Director of Research recaps conference where patient experience takes center stage
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients as Partners 2019 in Philadelphia, PA. It was great to hear about...
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Published May 14, 2019 PKD patients are very well-informed about their disease and its consequences. As a disease impacting multipleRead More -
If you follow us on social media (Facebook, Twitter, Instagram and LinkedIn), we hope you’ve already heard about our excitingRead More -
My name is Lindsay Roper, I grew up in northern California and met my husband Alan while we were goingRead More -
Our Fundraise Your Way program is one of the best ways you can help create a future without PKD. When youRead More -
My name is Kate Callahan and I’m a 21-year-old college student from the San Francisco Bay Area. My journey withRead More -
As Kidney Month starts winding down, keep up the momentum by raising your voice for PKD! Both the House andRead More