Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
The ADPKD Registry has launched!
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD patient registry. Over the past few years, the PKD...
Living with PKD at an Advanced Age
Written by guest contributor Matthew Hallisey Published August 27, 2019 “Get busy living, or get busy dying.” — Ellis Boy "Red" Redding (Morgan Freeman) in The Shawshank Redemption (1994) My...
Researcher Spotlight: Katharina Hopp, Ph.D.
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases and Hypertension, Polycystic Kidney Disease...
Catching up with Paige
We sat down with Paige Trischler to learn what’s new in her world and how she navigates living with PKD as a teenager. PKD Foundation (PKDF) Hi Paige! What’s new since the last time you shared...
Funding the federal budget: What you need to know
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal...
Researcher Spotlight: Whitney Besse, M.D.
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with...
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Written by Alexis Denny, Director of Government Affairs Published September 24, 2019 For the last 12 years, PKD research hasRead More -
Published September 13, 2019 Researcher: Robin Maser, Ph.D. | University of Kansas Medical Center PKD Foundation (PKDF): How did you firstRead More -
Written by guest contributor David A. Baron, Ph.D. Published September 10, 2019 Not long after I joined the PKD FoundationRead More -
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launchRead More -
Written by guest contributor Matthew Hallisey Published August 27, 2019 “Get busy living, or get busy dying.” — Ellis BoyRead More -
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases andRead More