Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Researcher Spotlight: Whitney Besse, M.D.
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with...
PKD Walk: Meet Sue Truhlar
Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout the country, participants are breaking in their walking shoes and beginning this year’s...
August Recess: Make your Voice Heard
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact...
ADPKD Registry: Making enrollment a Foundation priority
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a...
Understanding the “Advancing American Kidney Health” executive order
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one...
PKD Walk: Moving PKD research forward!
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 Walk for PKD events will take place across the country with a goal of raising $2,000,000 for...
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Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases andRead More
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We sat down with Paige Trischler to learn what’s new in her world and how she navigates living with PKDRead More
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As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of GovernmentRead More
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Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney:Read More
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Walk for PKD — Twin Cities The first fall Walk for PKD event is just around the corner. Throughout theRead More
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As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understandRead More