Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
An Evening of Hope …Hope for the Future
“Mrs. Keefer, are you ready?” I rose from my seat with a huge smile on my face and said, “Yes, I sure am!” I followed the event coordinator backstage at the ballroom in the Beverly Hilton Hotel...
A Daughter’s First Love
My little 5-year-old heart filled with joy as I peered out the living room window and saw my dad’s car pulling in the driveway. I barely let him get through the door, place his lunchbox on the...
A Dialysis Legacy
Renal Business Today asked me to write an article on what it was like to be on dialysis. In my September 20th blog post, “Blink of an Eye,” I talked about my dialysis nurse, Bob Cogley, who had...
Thankful for the Highs and Lows
This crazy ride we are on, known as life, is a bumpy one filled with highs and lows, ups and downs. The sooner we embrace the constant in our life, which is change, the easier this journey will...
My Almost Non-Existence
Before reading this post, please note that this is a sensitive topic for many. It is not meant to take any sort of political stance on the issue. However, I felt compelled to share with you how...
Lifelines to Our Future
I stood tall as I felt the cold tape measure run down the center of my spine. Mom said, “15 inches.” This was definitely not something I would wish another Mom to have to do. I had asked my Mom...
-
I attended a dinner event this week and the person who intrigued me the most was seated right next toRead More -
My eyes filled with tears of sheer joy as I looked at my fellow float riders who have overcome soRead More
-
10 …9 …8 …7 …6 …5 …4 …3 …2 …1 …HAPPY NEW YEAR!!!!!! This once-a-year 10-second countdown is filled withRead More
-
“Mrs. Keefer, are you ready?” I rose from my seat with a huge smile on my face and said, “Yes,Read More
-
My little 5-year-old heart filled with joy as I peered out the living room window and saw my dad’s carRead More
-
Renal Business Today asked me to write an article on what it was like to be on dialysis. In myRead More