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Participating in research – why PKD patient registries are important

Participating in research – why PKD patient registries are important

Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who...

Research
PKDF Chief Scientific Officer on kidney organoids: what they are and why they’re important

PKDF Chief Scientific Officer on kidney organoids: what they are and why they’re important

There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the development of kidney organoids may help us get closer to new...

Research
PKDF Director of Research recaps conference where patient experience takes center stage

PKDF Director of Research recaps conference where patient experience takes center stage

Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients as Partners 2019 in Philadelphia, PA. It was great to hear about how researchers and study sponsors are working to infuse the patient...