Advocacy
Awareness
Education
Research
The ADPKD Registry has launched!
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD patient registry. Over the past few years, the PKD Foundation has collaborated with PKD researchers, clinicians,...
Researcher Spotlight: Katharina Hopp, Ph.D.
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases and Hypertension, Polycystic Kidney Disease Research Program Katharina is a 2018 research grant awardee of the Dr. Vincent H....
Researcher Spotlight: Whitney Besse, M.D.
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney: During my clinical Nephrology fellowship, I chose to work with research mentor Stefan Somlo who studies PKD and had an exciting cohort...
Participating in research – why PKD patient registries are important
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the PKD community. How many children have PKD in the United States? Who...
PKDF Chief Scientific Officer on kidney organoids: what they are and why they’re important
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. This week, our Chief Scientific Officer, Dr. David Baron, shares how the development of kidney organoids may help us get closer to new...
PKDF Director of Research recaps conference where patient experience takes center stage
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients as Partners 2019 in Philadelphia, PA. It was great to hear about how researchers and study sponsors are working to infuse the patient...
-
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launchRead More -
Researcher: Katharina Hopp, Ph.D. | University of Colorado Denver | Anschutz Medical Campus Assistant Professor, Division of Renal Diseases andRead More -
Researcher: Whitney Besse, M.D. | Yale University PKD Foundation (PKDF): How did you first get involved in PKD research? Whitney:Read More -
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive PolycysticRead More
-
There are some truly fascinating techniques in the research field being used to help increase our understanding of PKD. ThisRead More -
Earlier this week, I joined over 200 people from pharma, biotech, patient advocacy, regulatory agencies and patients at Patients asRead More
