
Nancy Salkeld
[caption id="attachment_9116" align="alignright" width="300"] Nancy and her sons[/caption] In 1996, during exploratory surgery for endometriosis (which would not be confirmed until 15 laters), my surgeon found three fourths of my liver to be covered with cysts. I went through a...
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Cynthia Christiansen
I participate in the Walk for PKD in memory of my father! He passed from complication of PKD eight years after his kidney transplant. I also walk with the hope to find a cure to support my advancing disease and my children.
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Mary Suydam
I have ADPKD. I was blessed to receive a life-giving transplant nearly 6 years ago that gave me a second chance at life. I walk for my mother, who passed away way before her time. I walk for all the PKD patients who wait for a transplant....
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Jacque English
I was diagnosed with PKD in 2003. I manage my disease with blood pressure medication and regular trips to my nephrologist. My kidneys are getting larger and my function is beginning to decline. Seven years ago this August, my mom...
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Emily Stoll
At my summer family reunion vacation this year, I organized a Party for the PKD Foundation that was sponsored through a Thrivent Financial Action Grant. Through the grant, I got $250 that I used to purchase refreshments for the party,...
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Lisa Mohr
My father, Will, and his two brothers had PKD. Will died in 1980 when I was only 17, and I have very few memories of him other than him being sick. He and my mother, Audra, had four children. My...
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Stephanie Smetana
My earliest memory of my mom suffering the effects of PKD was of her laying on our couch crying in pain as another cyst had burst. My mom is not a crier. I never got to meet my maternal grandmother...
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Patti Ruffin
Seeing five family members suffer from PKD has given me the passion to carry on the legacy that they couldn't because they ran out of time. I can't control the fact that I have PKD, but I can control how...
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Maureen Bickings
PKD is not be allowed to beat me! Diagnosed in my thirties with a husband, 3 children and life in full swing, I was terrified! Life changed, not abruptly at first, but slowly. Over the span of a few years...
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David Baron
David Baron, Ph.D. I am often dumbfounded by the rapid advances made in molecular biology and genetics since my graduate school days in the 1970’s. It’s all I can do to keep up, but it is the kind of work...
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Gene Okun
Gene Okun Meet Gene Okun! Gene has PKD, and so did his father. Since his diagnosis, Gene’s kidneys have grown big (doctors say they may be the world’s largest) and dumb (functioning at only 18 percent). Currently in search of...
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Paige Trischler
Paige Trischler “Each day I am thankful for Nights that turned into mornings Friends turned into family Dreams that turned into reality And likes that turned into loves…” -Anonymous Those four lines sum up my motto on life. I am...
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