Angela Culp
I was diagnosed with PKD at age 30; the fourth generation in my family. My father and grandmother were on dialysis for many years. My great grandmother had PKD, and without access to dialysis, passed away at age 43. I...
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Avril Somervile
I walk for my beloved twin sister, Sheryl (Shay) Letang. After coming down with flu-like symptoms (possibly COVID), she succumbed to renal failure on April 8, 2020. Sheryl was diagnosed with PKD shortly after having her daughter and received a...
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Shery Fogel
I turned 40 and seven days later I was on dialysis. I didn't know I had PKD until one day I went to see my primary care physician about a headache. She did labs, called me while I was walking...
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Courtney Josephson
Before my diagnosis, I was a healthy 20-year-old. My only problems were balancing college and part-time work. I’d just finished my last semester of college when I began feeling ill. A serious kidney infection had been brewing and I had...
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Mike Reposa
PKD has affected my family for generations. My father was diagnosed in his early 30s and eventually went on dialysis at age 50. He did dialysis for about a year before having a transplant. Sadly, he died young from stroke...
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Merari Agiular
I’m 25 years old and I was diagnosed with PKD in March 2024. PKD runs in my family: my grandfather passed away from it, my dad has it, and most of my paternal aunts have it as well. The week...
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Sara DornBrook
My husband, Miles, and I met when we were just teenagers and had family members suffering from PKD. We knew quite a bit about the disease. When he was 23, he went to the doctor for allergy issues, and they...
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Paolo Ramirez
On February 15, 2024, a day after Valentine's Day, I received the gift of love and life: live organ transplant, a kidney. Thanks to God and the unconditional love of my lovely wife and soul mate, Isa, who without the...
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Delilah Rivera
I walk for polycystic kidney disease (PKD) because it’s profoundly affected my family. I walk for my dad, my cousins (Wanda and Nana), and my uncle (Junior), all of whom have battled the challenges of this disease. I also walk...
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Ro Felicia
I went undiagnosed my whole life until I started checking my health records. I felt as if my body was breaking down. My health records showed my kidney function had declined—it had been declining for years. No doctor ever told...
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Patsy Parkin
My sons, Donald, David, and Daniel were born on June 21, 1978. They’re perhaps the largest triplets born in the U.S. (a total of 22 lbs., 22 oz., or 23 lbs., 6 oz)—larger than the current record holders in the...
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Jeannie Brown
I am Jeannie Brown and I was diagnosed at 21 with PKD. There are six generations on my maternal side who’ve had or currently have this disease. I grew up educated in what PKD was and what the future may...
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