Rachel Homewood and Bennett Homewood
My two-year old son, Bennett, was unexpectedly born with ARPKD. It’s been a long journey so far. NICU stay, surgery, meds, blood draws, blood pressure checks, and many doctor appointments. Despite everything he’s gone through and will continue to go...
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Corey Morgan
I found out I had PKD when I was seven weeks pregnant with my daughter. It wasn't the best news—and then I found out my unborn child could also have PKD. After she was born, we ran tests and it...
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Holly Blaine
I found out I had PKD in October 2015 when I was 29 years old. I was going to become a living donor for my father who also has PKD. I had an initial ultrasound, and followed up with my...
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Greta Ellis
My father died at age 39—I was only 13 years old. We were unaware he had PKD until after his death. Looking back, he had all the outward signs (large belly, high blood pressure). I began having problems with constant...
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John Ventresca
Several years after I was diagnosed was when I started to feel the effects of PKD. The first issue I noticed was fatigue, and also over time, I noticed more and more back pain. In the afternoon I would notice...
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David Birkley
It was the year 2000. A longtime friend of mine noticed that I had sudden weight loss and recommended that I go see a doctor, which I did. My mother had PKD, and I felt it was a good time...
Read MoreKate Williams
My name’s Kate. I have PKD, and my son, Owen, has PKD. So, finding out that first day, everything was really kind of a blur. Our doctor explained what PKD was and then said please don't go home and Google...
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Samuel Spencer
I was 12 when I was diagnosed with PKD. It turns out my genes mutated, so I'm the only one in my family with the disease. Today, I'm 28. I didn't really think much about the disease until this year...
Read MoreDiana Hartley
My husband, Tim, was diagnosed in 2002. In March of 2018, he was eligible to begin the transplant process. He was placed on the list about a year ago and received his new kidney from a living donor on August...
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Jan Elf
I was diagnosed with PKD when I was 40. My sister was also diagnosed near that time. She was six years older than me. She died five years ago from a stroke. I began dialysis when I was 59, I'm...
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Darlene Vandenbergh
My father was diagnosed with PKD in the 1990s when the only thing we knew about PKD was cysts on kidneys, dialysis, kidney transplant, that it was hereditary and that it affected many organs in the body. My dad lost...
Read MoreAmber-lee Kate Petersen
My name is Amber-lee Kate Petersen, 18 years old, and I live in South Africa. In my final year of high school, I fell incredibly ill. I experienced excruciating pain in my abdomen area. I was kept in a hospital...
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