Skyla Tanner
[caption id="attachment_9439" align="alignright" width="300"] Skyla with her husband and children.[/caption] I have a disease. I don’t like the way those words sound. So, I don’t speak of it often. In fact, many days I ignore it. Even when my body...
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Esmeralda Juarez
[caption id="attachment_9438" align="alignright" width="250"] Esmeralda Juarez[/caption] I've had PKD for over 13 years, but by God’s amazing grace I received a kidney transplant in 2006. I had to go through dialysis for three months. I've learned to live with it,...
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Colleen Clark
[caption id="attachment_9437" align="alignright" width="250"] Colleen's husband, Bob.[/caption] My husband was diagnosed with PKD in his mid-50s and we were sent to Emory University Hospital in Atlanta. Remarkably, his doctor was Arlene Chapman, a world-renown specialist and scientist. At that time,...
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Brittany Russo
[caption id="attachment_9436" align="alignright" width="300"] Brittany's daughter, Savvy.[/caption] We found out my daughter Savvy had ADPKD at the age of one. My husband also has ADPKD, as well as his father and sister. I was very frightened for Savvy and I...
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Sherry Sbraccia
[caption id="attachment_9435" align="alignright" width="300"] Sherry's son and daughter.[/caption] I am 39 years old, and up until recently, I never gave a second thought to my kidneys and had never heard of PKD. That all changed a couple of years ago....
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Cynthia Conway
I found out I had polycystic kidneys in 1995. I've been doing dialysis three times a week for five years. I have three grown children who also have PKD. My firstborn is 47 and his three kids also have the...
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Margery Garcia
[caption id="attachment_9408" align="alignright" width="250"] Margery, her husband and her son.[/caption] I was born and raised in the Philippines. My mom and dad are both Filipinos. I moved to USA in 2008 to work as an occupational therapist. I work in...
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Mark Simowitz
[caption id="attachment_9307" align="alignright" width="250"] Mark Simowitz[/caption] I am 58 years old and I am the first in my family to have PKD. I found out in 2005 while taking my college-age son to see his orthopedic doctor. I asked the...
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Amber Paxton
I was diagnosed with ADPKD through ultrasound in September 2016 at age 22. My father had recently been diagnosed as well, following kidney issues, and his lack of a relationship with his father made him unaware of the disease. My grandfather lives...
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Carol Soha
I am lucky when it comes to PKD. I didn't start to go into failure until my early 60s, and then before going into complete failure, I received a kidney from a living donor. This donor was John, my daughter's...
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Sharon Tomlin
[caption id="attachment_9148" align="alignright" width="300"] Sharon's nephew, Daniel, and his children, as he awaits a transplant.[/caption] My husband's family has a long history of PKD. My husband, age 72 now, is one of the fortunate ones and received a kidney transplant over...
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Laranico Wood
When I was diagnosed a few years ago, all I could think of was that I'd have to go on dialysis. My dad has PKD and he's on dialysis. My doctor told me if my dad is on dialysis 9 times out...
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