by Sydney Johnston | Jan 5, 2021 | ADPKD, Advocacy
Published on January 5, 2020 | Research is a term often thrown around to describe everything from complex, controlled experiments to some light Google searching to find your favorite celebrity’s height. When we consider the value of medical research, though, it’s...
by PKD Foundation Staff | Sep 4, 2019 | ADPKD, ADPKD Registry, Awareness, Education, Research
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD patient registry. Over the past few years, the PKD Foundation has collaborated with PKD researchers, clinicians, patients,...
by PKD Foundation Staff | Jun 11, 2019 | ADPKD, Chapters, Q and A, Transplantation
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinator for the past 19 years. Her passion lies in heightening PKD awareness through fundraising events, talking to anyone and everyone about PKD, and...
by PKD Foundation Staff | May 29, 2019 | ADPKD, ARPKD, Education
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with PKD. What did attendees...
by PKD Foundation Staff | Mar 7, 2019 | ADPKD, ARPKD, Education
We’re only a couple months out from the 2019 PKD in Children Conference, and if you’re a PKD parent, this is a can’t-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to learn essential information on how to manage your...
by admin | May 1, 2018 | ADPKD, Advocacy
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news of the first ADPKD treatment and how tolvaptan will impact the PKD...
