The Kidney Genetics & PKD Clinic at Brigham and Women’s Hospital (BWH) is an outpatient nephrology clinic specializing in the care of individuals with genetic and familial kidney disorders, with a special focus on polycystic kidney disease (PKD). Our clinic provides comprehensive diagnostic evaluation and clinical care to those with known or suspected PKD and other inherited kidney diseases. Our team consists of kidney physicians with extensive training in genetics and PKD, a genetic counselor, renal nurses and practice assistants who work together to coordinate care, facilitate genetic testing and provide detailed teaching to patients and families. Given the frequent involvement of other organs in PKD, we created the BWH PKD Clinical Network, a multidisciplinary team of providers with expertise in PKD and its complications. This network includes liver specialists, urologists, neurosurgeons, interventional radiologists, and renal nutritionists, with the goal of facilitating referrals and coordinating clinical decision-making. We work very closely with the BWH Kidney Transplant team for timely, safe and effective transplant planning for our patients who need renal replacement therapy. We have also established a close partnership with the Boston Children’s Hospital’s Kidney Genetics Clinic, to facilitate the transition from pediatric to adult PKD care, as well as to provide exceptional care to young family members. Finally, our institution is involved in cutting-edge research in the field of PKD and kidney genomics, and home to the Harvard PKD Center for polycystic kidney disease research.
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Partner Clinics
Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
About the COE ProgramCore Services
PKD Foundation Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
Care Team
- Ana Onuchic-Whitford, MD, Clinic Director Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
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Commonwealth Nephrology Associates
Commonwealth Nephrology Associates specializes in the care of patients with all causes of chronic kidney disease. As one of the most common renal genetic diseases, we have a large population of polycystic kidney disease patients and work to minimize kidney disease and cyst progression using our knowledge of the latest advances in management. Each of our clinics is established strategically in geographic areas to serve the local populations and integrate with the local providers and healthcare systems to organize all necessary testing and referrals. We also spend time with patients and their families to help them understand the implications of this diagnosis and risks to their other family members. We perform personalized office evaluations and examinations as well as review of imaging, labs, prognosis, and options for management in each of our locations (Framingham, Marlborough, Wellesley, Norfolk, Westwood, Quincy, Weymouth, Dorchester, Attleboro, Hyannis, Mashpee).
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Tufts Medical Center
At the Center for Polycystic Kidney Disease at Tufts Medical Center, our goal is to give patients a lifetime of individualized care. Our team treats patients with both autosomal dominant polycystic kidney disease (ADPKD) and the less common autosomal recessive polycystic kidney disease (ARPKD). Drs. Gordon, Perrone and Miskulin work closely with our colleagues to provide seamless care for all aspects of your condition. In addition, we collaborate with specialists throughout Tufts MC to evaluate and manage complications such as kidney stones, brain aneurysms and liver cysts. Most importantly, we understand what it’s like to live with PKD. We are here to address all of your needs, from pain management and genetic counseling to providing access to promising new drug therapies. Dr. Gordon and his team have extensive experience in the use of tolvaptan, both in clinical trials and as a prescription drug and can determine whether this medication is an option for you.
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