Our nephrologists are up to date on the newest guidelines of care for PKD. Our clinic is familiar with tolvaptan prescription protocols for patients who would benefit. We also have a world-class transplant program within our institution, which is important to provide timely, holistic care.
Partner Clinics
Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
About the COE ProgramCore Services
PKD Foundation Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
Care Team
Please click on a Care Team name to contact them.
- Anna Gaddy, MD, Clinic Director Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
Other Locations Close By
View All
Washington University School of Medicine
The Division of Nephrology at Washington University School of Medicine is at the cutting edge of research on cystic diseases affecting the kidney at both the basic science level and in clinical applications by translating these discoveries to patient care. Our REMS-certified physicians possess extensive expertise in prescribing tolvaptan and monitoring its use to slow progression of ADPKD in qualified patients.
See Location
Mayo Clinic Children’s Center (Rochester)
The Mayo Clinic Pediatric Cystic Kidney Disease Clinic is part of the Mayo Clinic Pirnie Translational Polycystic Kidney Disease Center, a collaborative and multidisciplinary center that includes PKD investigators working alongside Mayo Clinic clinicians and scientists with expertise in pediatric and adult nephrology, urology, hepatology, surgery, cardiovascular and neurovascular diseases, pain medicine, diagnostic and interventional radiology, kidney and liver transplantation, dialysis, physiology, molecular biology, genetics and reproductive medicine. This team approach means that promising therapies and biomarkers discovery move more quickly from the lab through clinical trials and into clinical practice to benefit patients with PKD and related disorders, conditions that can have devastating and life-threatening complications. The Mayo Clinic Pirnie Translational Polycystic Kidney Disease Center offers a broad variety of services including innovative therapies and opportunities to enroll in clinical trials.
See Location
Yale University
The Yale Inherited Kidney Disease program provides advanced level care to patients with cystic kidney disease, ADPKD, ARPKD and polycystic liver disease. It is co-led by Dr. Stefan Somlo and Dr. Neera Dahl. Patients have access to all levels of clinical care provided by Yale Medicine and Yale New Haven Hospital, including initial evaluation for diagnosis and risk prognostication, as well as access to coordinated subspecialty and tertiary care. We provide high level genetic consultation and access to phase 1, 2 and 3 clinical trials in ADPKD. This program integrates closely with other Yale New Haven Hospital/Yale Medicine programs including notably Hepatology,Transplantation, Pediatrics and Genetics. Within adult nephrology Whitney Besse MD, Marcelo Orias MD, PhD, Maryam Gondal MD, Aldo Peixoto MD, and Elyssa Noce, APRN have complementary clinical expertise in PKD. Within pediatric nephrology Dr. Jill Warejko and Dr. Christine Crana provide expert care.
See Location