Our nephrologists are up to date on the newest guidelines of care for PKD. Our clinic is familiar with tolvaptan prescription protocols for patients who would benefit. We also have a world-class transplant program within our institution, which is important to provide timely, holistic care.
Partner Clinics
Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
About the COE ProgramCore Services
PKD Foundation Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
Other Locations Close By
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Washington University School of Medicine
The Division of Nephrology at Washington University School of Medicine is at the cutting edge of research on cystic diseases affecting the kidney at both the basic science level and in clinical applications by translating these discoveries to patient care. Our REMS-certified physicians possess extensive expertise in prescribing tolvaptan and monitoring its use to slow progression of ADPKD in qualified patients.
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Mayo Clinic Children’s (Rochester)
The Mayo Clinic Pediatric Cystic Kidney Disease Clinic is part of the Mayo Clinic Pirnie Translational Polycystic Kidney Disease Center, a collaborative and multidisciplinary center that includes PKD investigators working alongside Mayo Clinic clinicians and scientists with expertise in pediatric and adult nephrology, urology, hepatology, surgery, cardiovascular and neurovascular diseases, pain medicine, diagnostic and interventional radiology, kidney and liver transplantation, dialysis, physiology, molecular biology, genetics and reproductive medicine. This team approach means that promising therapies and biomarkers discovery move more quickly from the lab through clinical trials and into clinical practice to benefit patients with PKD and related disorders, conditions that can have devastating and life-threatening complications. The Mayo Clinic Pirnie Translational Polycystic Kidney Disease Center offers a broad variety of services including innovative therapies and opportunities to enroll in clinical trials.
Go to Mayo Clinic Polycystic Kidney Disease (PKD) Resource Center
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Yale University
The Yale Inherited Kidney Disease Program offers advanced care for patients with cystic kidney diseases, including ADPKD, ARPKD, and polycystic liver disease. Co-led by Dr. Stefan Somlo and Dr. Maryam Gondal, the program provides comprehensive evaluation, diagnosis, and risk prognostication with access to coordinated subspecialty and tertiary care through Yale Medicine and Yale New Haven Hospital.
Patients benefit from expert genetic consultation and access to phase 1, 2, and 3 clinical trials in ADPKD. The program collaborates closely with hepatology, transplantation, pediatrics, and genetics teams. The adult nephrology team includes Drs. Whitney Besse, Marcelo Orias, and Aldo Peixoto, while pediatric nephrology care is led by Drs. Jill Warejko and Christine Crana, ensuring expert, multidisciplinary PKD care.
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