We have an innovative, population-health based ADPKD clinic. Besides usual referrals to our tertiary care center, we have built electronic health record tools to detect diagnoses of ADPKD and direct marketing for the clinic and education to any identified patients along with their nephrologists. We inform patients about the FDA approval for tolvaptan to slow progression of kidney disease and also encourage them and their family members to come in for appropriate screening for nonrenal manifestations of ADPKD. Once patients come to clinic, we offer the whole spectrum of ADPKD care: evaluation for treatment with tolvaptan; cardiovascular risk reduction with BP control, starting ACEi/ARB, and other risk assessments; screening for nonrenal manifestations like heart valve disorders, brain aneurysms, etc where appropriate. We also provide counseling and genetic/imaging-based ADPKD screening for children and relatives, pediatric nephrology evaluation of early onset PKD and lifestyle/ risk factor modification to delay onset of kidney disease. Finally, patients with advanced kidney disease receive early evaluation and early referral for kidney transplant with the goal of pre-emptive kidney transplant. In addition, our ADPKD researchers are at the forefront of ADPKD genetic research. Our team frequently identifies potential clinical trials for which patients may be eligible and refers patients to clinical sites. We are actively engaged in several clinical trials at Geisinger although no ADPKD-specific trials at this time. However, we are currently investigating the feasibility of participating in the Falcon trial and are open to participating in future trials.
Center of Excellence
Centers of Excellence provide the broadest range of services and expertise.
About the COE ProgramCore Services
To be a PKD Foundation Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following disciplines:
- Nephrology
- Radiology
- Nutrition
- Hepatology
- Genetics
- Pain management
- Patient navigation services
Care Team
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Gurmukteshwar Singh, MD
PKD primary focus
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Alexander Chang, MD
PKD primary focus
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Mahmud Khan, MD
Familiar with PKD
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Prince Mohan, MD
Familiar with PKD
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Jason George, MD
Familiar with PKD
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Batoule Majed, MD
Familiar with PKD
- Candace Metzger, Patient Navigator Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
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