In our multidisciplinary clinic, a group of highly talented physicians will work together to implement preventive strategies and provide the state of treatment where needed. We will also use cutting edge genetic tests and imaging techniques to prognosticate the disease progression and implement preventive treatments aimed at slowing the growth of the cysts. Our team includes experts in Nephrology, Radiology, Genetics, Hepatology, Nutrition, Pain management, Urology and Neurosurgery.
Partner Clinics
Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
About the COE ProgramCore Services
PKD Foundation Partner Clinics include, at a minimum, a nephrologist interested in specialized management of ADPKD. Partner Clinics are part of the overall mentorship and educational network.
Care Team
- Ehsan Nobakht, MD, Clinic Director Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
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Children’s National Hospital, Inherited and Polycystic Kidney Diseases Program
Within the Division of Nephrology, we have created a center of excellence focused on PKD and other Inherited renal diseases.
The Children’s National Inherited and Polycystic Kidney Disease (IPKD) program is a “one-stop shop” that provides patients with comprehensive care for every facet of their disease. The care team is centered in Nephrology, and includes expertise from hepatology, endocrinology, genetics, nutrition, and psychology. A patient navigator guides families through clinic visits, connects them with the right specialists, and serves as a point of contact for families before and after visits.
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