Mount Sinai Hospital

UHB Nephrology clinic offers comprehensive services to ADPKD patients referred from primary care providers in the community with suspected cystic kidney diseases detected on a routine ultrasound of the abdomen, or a CT Scan, or patients who have a family history of ADPKD, or have CKD with cysts. This clinic is open 7 days a week with Nephrology services available Mondays, Tuesdays and Fridays from 1 PM to 5 PM. Options for other days to support the needs of our patients on other days is also available as either in person or tele-health services. All other services relevant to ADPKD patients such the availability of a Hepatologist, GI services, Urology, General surgery, Cardiology, primary care services, Neurology services, Neuroradiology services and radiology services, are all available in the same clinic on some specific days 6 days a week. We offer genetic testing for CKD and for all cystic kidney diseases. In complicated genetic test results requiring further interpretation, and guidance from genetic counsellers or if it involves assessment of families across generations, or when it involves whole genome testing we partcipate collaboratively with Columbia University in such special circumstances. Our Neprhologits have had a long term relationship with Nephrologists from Columbia University in such instances. All Nephrologists are also medical directors at several affiliated dialysis clinics which offer in-center hemodialysis, home hemodialysis and Peritoneal Dialysis for such patients should the need arise. UHB Downstate Hospital is also home to the only Kidney Transplant services in Brooklyn and currently performing over 140 transplants per year. Our transplant center is the only transplant center in Brooklyn, Queens and Staten Island. The transplant clinic is fully staffed with many transplant surgeons, NP’s, PA’s and seasoned nursing staff. Our team of Nephrologists offer diagnostic and therapeutic services for the management of ADPKD and are all REMS certified to prescribe medications approved for ADPKD to slow the growth of renal cysts. This clinic is home to several Nephrology clinical trials and is actively following several patients with ADPKD that would be willing to participate in new trials, when available. We have a full time dedicated clinical coordinator to actively enroll and help follow such patients longitudinally. We have a an entire Department dedicated to offering all services for NIH sponsored basic and clinical sciences trials as well as pharmaceutical sponsored clinical trials from the College of Medicine. We have post graduate scientists who can create and maintain registries. Our group is enthusiastic to participate in further clinical trials to understand the reasons for progression of CKD in some patients and those who do not respond to AVP antagonists, so as to help prevent these patients going onto dialysis, thus offering hope to our patients who are living with the fear of this disease and its burden day in and day out. SUNY Downstate Health Sciences University is home to SUNY Downstate Medical School, School of Public Health, Nursing school, and several other allied health care professional schools. These schools offer graduate, post graduate and technical training in several categories of sciences beneficial to patients with ADPKD.