Polycystic Disease Program -Polycystic kidney disease (PKD) is a complex condition that can impact patinet health in many ways. To manage PKD properly, patients need more than a nephrologist. pateints need a team of doctors and nurses with adequate expertise in PKD working together. At Swedish, our goal is to give patients comprehensive, individualized care. Our team includes leading experts in managing PKD, including, but not limited to: Adult and pediatric nephrologists A transplant nephrologist A nephrology nurse(patient navigator) A liver specialist Surgeons Interventional radiologists All have vast experience in managing this complex disease. Most importantly, we understand what it is like to live with PKD. We stride to address ADPKD pateints needs, from pain management and family counseling to providing access to promising new drug therapies. In our comprehensive approach to treat PKD, we address multiple disease aspects, including the physical and psychosocial burden. We start with individualized recommendations for dietary changes, water intake and lifestyle modifications, followed by medical treatment. Dr. Amro, director of the program, is a national expert in PKD. He and his team have extensive experience in PKD management, and can offer patients access to cutting edge new therapies. Treatments may include: Diet and lifestyle modification Counseling and family support Genetic counseling and testing Medications including tolvaptan and octreotide Interventional radiology (drains cysts in kidney and liver) Screening and treatment of brain aneurysms which can occur in patients with PKD Surgical approach including nephrectomy (kidney removal) and cysts reduction in selected cases Supporting kidney transplant and dialysis, including home dialysis for patients with advanced disease. Swedish polycystic kidney center is a site for multiple clinical trials in ADPKD.
Center of Excellence
Centers of Excellence provide the broadest range of services and expertise.
About the COE ProgramCore Services
To be a PKD Foundation Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following disciplines:
- Nephrology
- Radiology
- Nutrition
- Hepatology
- Genetics
- Pain management
- Patient navigation services
Care Team
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Osama Amro, MD, MS
PKD primary focus
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Sonal Avasare, MD, Pediatric Nephrologist
Familiar with PKD
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Christine Logar, MD
Familiar with PKD
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Vadivel Nidyanandh, MD, Transplant Nephrologist
Familiar with PKD
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Christian Kuhr, MD, Transplant Nephrologist
Familiar with PKD
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Stephen Monteith, MD, Neurosurgeon
Familiar with PKD
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Oren Fix, MD, Liver Specialist
Familiar with PKD
- Alethea Ritchie, RN, Nephrology Nurse Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
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