The CHOP Inherited Kidney Diseases (IKD) program is a “one-stop shop” that provides diagnostics and clinical management for infants and children afflicted with polycystic kidney disease and other single gene disorders of kidney structure and function. The care team is centered in Nephrology, and includes expertise from hepatology, endocrinology, genetics, nutrition, and psychology. A patient navigator guides families through clinic visits, connects them with the right specialists, and serves as a point of contact for families before and after visits.
Pediatric Centers of Excellence
To be a PKD Foundation Pediatric Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following: Pediatric Nephrology, Genetics, Pediatric Hepatology, Pediatric Nutrition, Social Work.
About the COE ProgramCore Services
To be a PKD Foundation Pediatric Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following:
- Pediatric Nephrology
- Genetics
- Pediatric Hepatology
- Pediatric Nutrition
- Social Work
Care Team
-
Lisa Guay-Woodford, MD
PKD primary focus
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
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Nephrology Associates, PA (DE)
Nephrology associates is the largest and most comprehensive nephrology practice operating across the entire state of Delaware. Our group comprises a network of skilled nephrologists, and healthcare professionals, providing top-notch kidney care to patients in every corner of the state. With clinics strategically located throughout the state, we ensure that patients have easy access to our services, regardless of their geographic location. Our extensive network of clinics enables us to serve both urban and rural communities effectively. Our group offers a wide range of services, from preventive kidney health screenings to advanced treatments for chronic kidney disease, kidney transplant evaluations and management, interventional nephrology and dialysis care.
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Thomas Jefferson University Hospital
Established in 2018, Jefferson’s PKD clinic is housed within the Division of Nephrology. The main goals of the Jefferson PKD clinic are to delay the need for renal replacement therapy, collaborate with other organizations to find treatments and a cure, and to ultimately improve the lives of those the disease affects. The clinic provides state-of-the-art care, with individualized management plans for each patient based on family history, gene mutations and lifestyle. The PKD registry was established in October 2020 and has recruited most of the PKD patient population that are currently seen at Jefferson’s Center City office. The goal of the registry is to study the impact of lifestyle, including diet and exercise, on disease progression.
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