Established in 2018, Jefferson’s PKD clinic is housed within the Division of Nephrology. The main goals of the Jefferson PKD clinic are to delay the need for renal replacement therapy, collaborate with other organizations to find treatments and a cure, and to ultimately improve the lives of those the disease affects. The clinic provides state-of-the-art care, with individualized management plans for each patient based on family history, gene mutations and lifestyle. The PKD registry was established in October 2020 and has recruited most of the PKD patient population that are currently seen at Jefferson’s Center City office. The goal of the registry is to study the impact of lifestyle, including diet and exercise, on disease progression.
Center of Excellence
Centers of Excellence provide the broadest range of services and expertise.
About the COE ProgramCore Services
To be a PKD Foundation Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following disciplines:
- Nephrology
- Radiology
- Nutrition
- Hepatology
- Genetics
- Pain management
- Patient navigation services
Care Team
-
Jingjing Zhang, MD, PhD
PKD primary focus
- Wing Zeng, Patient Navigator Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
Other Locations Close By
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The Inherited Kidney Diseases Program at the Children’s Hospital of Philadelphia (CHOP)
The CHOP Inherited Kidney Diseases (IKD) program is a “one-stop shop” that provides diagnostics and clinical management for infants and children afflicted with polycystic kidney disease and other single gene disorders of kidney structure and function. The care team is centered in Nephrology, and includes expertise from hepatology, endocrinology, genetics, nutrition, and psychology. A patient navigator guides families through clinic visits, connects them with the right specialists, and serves as a point of contact for families before and after visits.
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The University of Pennsylvania
At Penn Medicine’s Polycystic Kidney Disease (PKD) Clinic, we provide complete care, diagnosis and treatment for autosomal dominant polycystic kidney disease (ADPKD). We treat patients with PKD in collaboration with multiple specialists throughout Penn Medicine including Cardiology, Urology, Interventional Radiology, End-Stage Kidney Disease programs and Transplantation, Gastroenterology, Hepatology, Neurosurgery, Medical Genetics, Pain Clinic, Stone Clinic and Maternal-Fetal Medicine Clinic. We participate in clinical research involving PKD patients as well.
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