University of Chicago Medicine

The PKD Center resides within the University of Chicago and University of Chicago Medicine (UCM) and is a national and international referral clinic for patients with autosomal dominant polycystic kidney disease or ADPKD. The UCM clinic has been in existence for more than seven years and provides specialized services to patients with ADPKD with access to both pediatric and adult nephrologists, experienced and trained in the management of ADPKD. The clinic provides support from a kidney trained dietician with extensive experience in ADPKD, a genetic counselor with extensive experience in hereditary kidney disorders and specifically in ADPKD, two nurses certified in Jynarque management, three medical assistants and a social worker to assist with medical insurance issues and referral for home and in-center dialysis. Medical staff provide ADPKD patient scheduling in radiology (i.e. MR, CT, ultrasound and PET imaging) and interventional radiology (i.e. patients with abdominal pain, cyst infections, bleeding, intracranial aneurysms and vascular access preparation). Surgical professionals experienced in complications related to polycystic liver disease, urolithiasis, renal cell carcinoma, intracranial aneurysms, kidney and liver transplantation are a part of the PKD Center as well as specialized pain clinics for those who with pain-related complications of ADPKD. Wait times for an appointment are typically no longer than 2 weeks and PKD center navigators are in place to help with referrals to the appropriate sub-specialty clinic. Research coordinators and a clinical research center are onsite to provide patients with the latest opportunities to participate in clinical research studies and clinical trials focusing on improving the lives of individuals with ADPKD.

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