Comprehensive ADPKD care including experts in clinical PKD, clinical experts in Genetics of PKD, dedicated genetic counselor, kidney seq testing over over 330 renal specific genes through the Iowa Institute of Human genetics including ciliopathies and tubulointerstitial diseases expert radiologists with experience in measuring total kidney volume, PKD expert pharmacisit whith experience in prescribing Tolvaptan and monitoring labs through the REMS protocol, referral to hepatology expert in cystic liver diseases, referral base to transplant center at the University of Iowa, referral base to peritoneal dialysis, home hemodialysis, or incenter dialysis.
Center of Excellence
Centers of Excellence provide the broadest range of services and expertise.
About the COE ProgramCore Services
To be a PKD Foundation Center of Excellence, a care center offers diagnostic and therapeutic services with identified staff responsible for most services in each of the following disciplines:
- Nephrology
- Radiology
- Nutrition
- Hepatology
- Genetics
- Pain management
- Patient navigation services
Care Team
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Lama Noureddine, MD
PKD primary focus
-
Jennifer Jetton, MD, Pediatric Nephrologist
Familiar with PKD
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Kathy Lee-Son, MD, MHSc, Pediatric Nephrologist
Familiar with PKD
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Christie P. Thomas, MD
PKD primary focus
- Tracy Bloebaum, Patient Navigator Familiar with PKD
Heedeok Han, M.D.
“Our COE designation has been tremendously positive for us, as it has elevated our ability to grow and continue to provide comprehensive, patient-centered care by uniting our multidisciplinary team and implementing best practices, which has directly improved outcomes for our PKD patients.”
Other Locations Close By
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