Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Elizabeth Tuttle

Walk for PKD Ambassador

I have been leading the Atlanta Walk for over 5 years and find volunteering my time to the PKD Foundation as a way to give back for the amazing care/treatment my mom received during her journey with PKD.

Neha Jaeel

PKD Connect Ambassador

Neha has recently moved from India to the US and is encouraged by the support groups and open discussions around PKD in the US. She is motivated to support families and caregivers of multi-generational PKD to be able to leverage the wide research and care resources available across the globe. 

Page last updated Jan. 2023

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