Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Central Ohio
Walk for PKD
Saturday, September 14
Thompson Park, North Shelter
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/centralohio.
If you have questions, email us at centralohiowalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Jennifer Mosher
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Polycystic Kidney Disease (PKD) has been an enduring part of my life. My mother was diagnosed with PKD, which tragically led to a brain aneurysm. Although she survived the surgery, she suffered a stroke shortly after and passed away at just 49. My aunt, her sister, also battled PKD, with cysts affecting her kidneys, liver, and pancreas. The pressure from these cysts eventually caused her organs to fail, and she passed away at 53. For many years, I tried to ignore the reality of PKD. However, when I had my child, my perspective changed. I started prioritizing my health and adopting a healthier lifestyle. I was diagnosed with PKD at age 30 and, apart from a painful cyst rupture, have managed the disease relatively well. My son was diagnosed with PKD at a very young age. At 10, he experienced severe back pain, and a CT scan revealed kidney stones caused by PKD. Thankfully, with dietary changes and medication, he hasn’t had a kidney stone attack in several years.
Marlene Yeldell
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
PKD has always been part of my life. My grandmother, father, two aunts, four uncles, and two cousins died prematurely because of PKD. I inherited PKD along with my sister, brother, two nieces, one nephew and several cousins. Two of my siblings preceded me by having living transplants from two of our siblings who don’t have PKD. I was blessed with a living kidney transplant from my brother Ed in 2014. Because that kidney was damaged by a blood clot shortly after surgery, I had a second kidney transplant five years later. My husband, Peter, was my second kidney donor in 2020, and we are grateful for our good health.
I’ve been a Central Ohio volunteer most of the years since 1997 when our group got started. I’ve served as Chapter Coordinator or Walk Coordinator many of those years. I have met wonderful people through the PKD Foundation, and volunteering gives me a sense of power over this disease. Please join me in working for a brighter, healthier future for those affected by PKD!
Page last updated February 2024
