Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Charleston
Walk for PKD
Saturday, September 21
James Island County Park, Stono Shelter
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/charleston.
If you have questions, email us at charlestonwalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Sean Williams
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Kate and I entered the world of PKD 7 years ago when our son and Kate were diagnosed just before his birth. We are thankful for the support of our friends and family as well as our extended family in the PKD community. We’ve recognized how important this support is, and this is why we are trying to give back to the community in the Charleston area. We are always looking to connect with the people affected by PKD and their families. We look forward to our November walk as a chance to get together and celebrate.
Kate Williams
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
I’m Kate Williams. I am a third grade teacher, ballroom dance enthusiast, wife, mom of two boys, and a PKD patient and parent. Both my son, Owen, and I were diagnosed with PKD in 2011, and we participated in our first Walk for PKD that same year. Since then, the PKD Foundation has been a constant source of support and hope for our family. I became the Charleston walk coordinator in 2013. Our family is passionate about finding a treatment and cure for this disease. Together, we can end PKD!
Page last updated February 2024
