Welcome to the



With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Charlotte Community Meeting

Join the Charlotte Community for our next virtual meeting. This is a great time to share your PKD journey, make connections, and hear from others within the PKD community who understand what you’re experiencing.


Event Details

Thursday, May 25, 2023
7 pm – 8 pm

Video conference link will be emailed upon registration.

abbreviated lockup of PKD Connect Conference 2023 (PKDCON 2023) with PKD Foundation logo and illustration of Denver Colorado mountains

Registration for PKD Connect Conference (PKDCON) is open!

PKDCON brings together every part of the PKD community to provide education, research updates, resources, and networking opportunities. In-person and virtual options are available. Learn more and register today.

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to announce Centers of Excellence. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about this program and to find a Center of Excellence or a Partner Clinic.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Kendyll Bennett

Kendyll Bennett

Walk for PKD Ambassador




Karen Allen

PKD Connect Ambassador

Karen Allen is a native of Kettering Ohio but has called Charlotte home since 1996.  She has been working in the financial industry for 19 years. Karen enjoys traveling, hiking, tennis and golf in her free time. With the support of her husband Jeff and daughter Rachel, she excited to volunteer for the PKD Foundation and cultivate the PKD community in the Charlotte region.

Page last updated December 2022

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