Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Hudson Valley
Community Meeting
Join the Hudson Valley community for their October virtual meeting with Dr. Heedeok Han from Columbia University. Dr. Han will return to offer valuable insights on PKD. It’s the perfect chance to connect, ask questions, and stay informed on the latest updates in the PKD community.
Event Details:
Thursday, October 10, 2024
7pm to 8pm
2024 Hudson Valley
Walk for PKD
Saturday, September 21
Rockland Lake State Park
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/hudsonvalley.
If you have questions, email us at hudsonvalleywalk@pkdcure.org.
Susan R. Knafel Polycystic Kidney Disease Center
Open House for the PKD Community
Meet Rogosin’s PKD care team and others with PKD. Share experiences and ask questions. Featuring two small group sessions:
Discussion topics:
Havine a PKD-free child
Tolvaptan tips and tricks
Preparing for living with a kidney transplant
Tips for those newly diagnosed with PKD
Talking to your children with a 50% chance of having PKD
PKD issues beyond the kidney
Nutrition in PKD
Psychological aspects of PKD
For more information, download our flyer.
Event Details
Sunday, September 22, 2024
2-4 pm eastern
505 East 70th Street, 2nd floor
Please RSVP by September 8
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Darien and Josie DaCosta
PKD Connect Ambassadors
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Darien & Josephine (Josie) have been volunteering for the PKD Foundation’s Hudson Valley Chapter since 2009, and have been Volunteer Coordinators for the Chapter since 2011. Josie was diagnosed with PKD in late 2008, and received a living donor kidney transplant on October 29, 2009, donated by her youngest sister Frances.
Felicia Berenson Reinhardt
Walk for PKD Ambassador
Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!
Page last updated February 2024
