Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
Get Involved!
Are you interested in helping us grow the Indianapolis Community?
We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.
If you have questions, please email us at volunteers@pkdcure.org.
Indianapolis Community Meeting
I Have PKD, Where’s My Community?
Join us for our upcoming community meeting! Meet our new Indianapolis PKD Connect Ambassador, Kathy Malmloff Daniels and join in a discussion focused on ensuring better care for all individuals with PKD, understanding PKD through research and educating and empowering the local Indianapolis community.
We want to hear from you! Bring your ideas and topics that are important to you.
- What are you looking for from your local PKD community?
- How would you like to connect?
- What topics would you like us to cover?
Share your PKD journey and hear from others within the community who understand what you’re experiencing. We will share resources to help you manage PKD.
Event Details:
Tuesday, March 18, 2025
5:30 – 7 pm
Carmel Clay Library – Meeting Room C
425 E. Main St.
Carmel, IN 46032
|
|
Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Kathy Malmloff Daniels
PKD Connect Ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
Hi! I am excited to put my marketing and advertising skills to work to raise awareness and #EndPKD. My other passions include riding my Peloton, exploring National Parks with my husband, gardening, reading, cheering on my Indiana Hossiers and navigating life with two teenage boys.
I’m a third generation PKD warrior. I’ve witnessed the struggles of my grandma, aunts, uncles and my dad. I am committed to doing what I can to eradicate this disease. I’m excited to get to know the Indiana PKD community. I want to raise awareness, advocate for change, fundraise and provide education and support for Indianapolis patients and families.
Page last updated February 2025
