Welcome to the
community
With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.
Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.
2024 Los Angeles
Walk for PKD
Sunday, October 13
Santa Monica, Beach Park One
Registration/site opens: 9 a.m.
Join us this fall and be a part of the largest gathering of the PKD community.
Sign up today and bring treatments to patients faster with 100% of each donation funding life-saving research at
walkforpkd.org/losangeles.
If you have questions, email us at losangeleswalk@pkdcure.org.
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Registration for the 2024 Walk for PKD is now open! Find your walk at walkforpkd.org. |
The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.
There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.
Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.
Dwight Odland
pkd connect ambassador
Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.
I got involved as Chapter Coordinator in 2006 because I saw a clear need for improved patient education and support. I enjoy meeting fellow PKD patients and family members and doing what I can to help them in this journey. I also enjoy helping with the annual PKD Walk so that we can raise money for research to bring an end to this disease. In addition, I was a member of the PKD Foundation Board of Trustees from 2013-2019 and have also represented the PKD patient perspective at two international conferences. I’ve authored, and co-authored PKD-related papers and served as a “stakeholder” in research grant review sessions for the PKD Foundation and the Department of Defense. My personal mission is to improve “standards of care” for all PKD patients.
One of my favorite things about being a part of the PKD Foundation is meeting other volunteers and brainstorming / collaborating on how we can be more effective making a positive difference in the lives of our fellow PKD patients.
Page last updated February 2024
